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Stack Garth | Brandon | Durham | DH7 8SJ | telephone 0191 378 2099

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HSCIC-Who We Are and What We Do

The Health and Social Care Information Centre (HSCIC) was set up as an Executive Non Departmental Public Body (ENDPB) in April 2013 . The Health and Social Care Act 2012 sets out our responsibilities, which include:

  • Collecting, analysing and presenting national health and social care data
  • Setting up and managing national IT systems for transferring, collecting and analysing information. We can be directed to do this by the Secretary of State or NHS England
  • Publishing a set of rules (called a Code of Practice) to set out how the personal confidential information of patients should be handled and managed by health and care staff and organisations....Read more....

Animation

An animation has been launched to support awareness-raising.
The main aims of the animation are to:

  1. Explain the care.data programme
  2. Remind patients that they have a choice

Note that subtitles are available

Important information about your detailed Health Record

The GP practice or clinical service you are attending uses a secure computerised records system, which allows clinical staff to share information in your record to ensure the best care can be provided to you.
Please download this eDSM Leaflet for more information.

The Great North Care Record

Your information in the right place at the right time

A single ‘Great North Care Record’ across North East England has taken another step forward, with nearly all GPs practices agreeing to share their patient records. About 369 GP practices, or 96% in the North East, have agreed to turn on information sharing, allowing secondary care providers to view the GP records of 3.6 million people.

Download this Poster and Leaflet for further information.
You can also go to the website: www.greatnorthcarerecord.org.uk

 

Patient Data Information

Better information means Better Care

Information about you and the care you receive is shared, in a secure system, by healthcare staff to support your treatment and care. It is important that we, the NHS, can use this information to plan and improve services for all patients. We would like to link information from all the different places where you receive care, such as your GP, hospital and community service, to help us provide a full picture. This will allow us to compare the care you received in one area against the care you received in another, so we can see what has worked best.

Information such as your postcode and NHS number, but not your name, will be used to link your records in a secure system, so your identity is protected. Information which does not reveal your identity can then be used by others, such as researchers and those planning health services, to make sure we provide the best care possible for everyone.

How your information is used and shared is controlled by law and strict rules are in place to protect your privacy. We need to make sure that you know this is happening and the choices you have.
Please take time to read this Patient Information leaflet. You need to make a choice.

Care Data

Every household in England is receiving the leaflet ‘Better Information means better care leaflet’ during January.  The leaflet raises awareness amongst patients about how their information is used for purposes beyond their direct care, including for the care.data programme. There are a number of resources that provide additional information. NHS Choices Website Patient Information Line The national patient information line went live on 6th January.

The five most common questions have been:
  • Can I change my mind? (FAQ 12)
  • I can’t get to my practice to object, what should I do? (FAQ 10)
  • How long have I got to decide if I want to object? (FAQ 11)
  • What is the secure environment mentioned in the leaflet? (FAQ 3)
  • Do I have to do anything if I want my information to be used? (FAQ 17)

Further information is available from the National Patient Information Line (0300 456 3531) or from patient FAQs.

Accessible formats including Braille, audio and large print are available from the patient information line. In addition, large print and audio formats are available from the patient website.

Misconceptions

There are a number of public misconceptions about how data will be used. These are mostly due to a confusion around the different types of data that will be released by the Health and Social Care Information Centre (HSCIC). To make it easier the different types of data will be referred to as:

  • red (personal confidential data)
  • amber (pseudonymised data)
  • green (aggregated or anonymised data)

Each “colour” of data is protected by a different suite of privacy safeguards. For an explanation, see this blog by the Chief Data Officer.

For the avoidance of doubt:

  • Data will not be made available for the purposes of selling or administering any kind of insurance
  • Data will not be shared or used for marketing purposes (FAQ 23)
  • NHS England and the HSCIC will not profit from providing data to outside organisations (and certainly not your GP!)

Privacy Impact Assessment

For patients who wish to understand more about how their data is protected, a privacy impact assessment has been published for the care.data programme. This document provides details about the privacy implications of the programme (both negative and positive) and explains how each risk is being mitigated. In addition, the HSCIC has published a privacy impact assessment for all the personal data it processes, which includes the data extracted for care.data.

Summary Care Record

There continues to be some confusion about the differences between the Summary Care Record and the use of data for purposes beyond direct care. For details, see FAQ 14 and the final section of this guidance.

CARE.DATA EXTRACTION OF YOUR MEDICAL RECORDS

 In the first half of 2014 most of the medical data that is held by the practice will be extracted and sent to a central data store for the NHS at the Health and Social Care Information Service (HSCIC), this is not to be used as part of your care but will facilitate management of the health service and research by the NHS and other organisations such as universities of pharmaceutical companies.

Information will also be sent from any hospital treatment that you may have and, later on the programme, information from mental health services and social services will be included. Brandonlane Practice is required by law to send this information although you as an individual can opt out.

Information about medical diagnoses, prescribed drugs and test restults will be some of the information uploaded. Your NHS number, date of birth, and postcode will also be included but not your name and address.

You can object to the information being uploaded from the Practice. This will only apply to information in the practice and not information from other sources. A second opt out is available  if you wish to prevent information which may identify you from leaving the HSCIC and going to other organisations.

This is separate to the Summary Care record which you have heard about previously. The SCR is designed to improve your care. You may have sent a form opting out of this in the past. Unfortunately the Department of Health has stated that opt out will not apply to this new project and a further opt out is required.

You should have had a leaflet through your door from the NHS with some information about the project. Further information is available at the official NHS site.   If you wish to opt out of this programme please contact the surgery.